Lefebvre, H., Pelchat, D., Levert, M.-J., & David, C. (2007). Information for the development of knowledge to support the resilience of informal caregivers, Savoirs-Revue internationale de recherches en éducation et formation des adultes, 14, 93-108. (In French)

This preliminary study’s goal was to document the informational needs of informal caregivers, their sources of information, and the strategies used to obtain information. Two focus groups were established. The first was composed of informal caregivers to victims of a TBI, a stroke, or a medullar injury and the second of health professionals from different disciplines, involved in the treatment of these patients. Results show that relatives need information regarding the impact of disabilities on their daily lives and the ways to identify them. From the point of view of professionals, the need for information relates to the disabilities following the health problem and the strategies to deal with them. According to professionals, relatives satisfy their need for information by consulting the internet, the media, written documentation, and through exchanges with peers and health professionals.