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Everything you always wanted to know about TBI but were afraid to ask.
You are here : Home > Library > Experiences, perspectives, and needs of patients and their close (...) > 1997 > Frosch, S., Gruber, A., Jones, C., Myers, S., Noel, E., Westerlund, A., (...)

Frosch, S., Gruber, A., Jones, C., Myers, S., Noel, E., Westerlund, A., & Zavisin, T. (1997). The long term effect of traumatic brain injury on the roles of care givers. Brain Injury, 11(12), 891-906.

This study was conducted to identify the long term effects of traumatic brain injury (TBI) on the roles of caregivers. The subjects consisted of 155 caregivers of survivors with TBI who were randomly selected from 15 Midwestern state brain injury association databases. A questionnaire was developed by the researchers to determine factors affecting role changes of caregivers. The Role Checklist, by Barris, Oakley and Kielhofner, was also included with the questionnaire. Both were mailed to each selected caregiver and used for data gathering. The data obtained were analyzed to determine existing trends in the data. Graphs were utilized to depict the trends that were identified. The following trends and conclusions established by this research include: a) behavioural effects of the survivor with a TBI are associated with the number of role changes experienced by caregivers; b) participation in support systems is associated with the number of role changes experienced by caregivers; and c) caregivers who care for a person with a TBI in the home will show a larger number of role changes than those who do not provide direct care for a person with a TBI.