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You are here : Home > Library > Experiences, perspectives, and needs of patients and their close (...) > 2008 > Cormier, M. (2008) Perceived Needs and Adjustment Strategies in the Three (...)

Cormier, M. (2008) Perceived Needs and Adjustment Strategies in the Three Phases of the Continuum of Care from the Point of View of People with Traumatic Brain Injuries, Their Close Ones and Interveners in Bordeaux, Master’s thesis, Faculty of Nursing, Université de Montréal. (In French)

This study is part of a larger research project that aims to identify the perceived needs and adjustment strategies of people with a traumatic brain injury (TBI), their close ones, and the interveners in the three phases of the continuum of care and services in three regions of Québec and three regions of France. The study presented here attempts the analysis of the data collected from participants in the Bordeaux region of France. The aim is to see which perceived needs are fulfilled or not by the care and services offered, from the point of view of people with a TBI, their close ones, and interveners in Bordeaux. The study also seeks to identify adjustment strategies people with a TBI develop to reach a satisfactory level of social participation. The model Production Process of the Disability is used as the framework for this study. Focus groups were conducted with 11 people with a moderate or severe TBI on the Glascow coma scale (GCS), 4 close ones of persons with a TBI, and 12 interveners of the Bordeaux health network. The results show that several perceived needs at the information, support, and care and services levels were not fulfilled at the three phases of the continuum of care. To that effect, persons with TBI and their close ones use diverse adjustment strategies, such as information research and the use of community contacts to obtain services. Interveners are aware of the different needs of persons with TBI and their close ones, however, they often feel powerless to fulfil these needs. Through this study, conducted within a larger research project, the strengths and weaknesses of the care and services network in the Bordeaux region are highlighted, based on the perspectives of the people directly affected by the organisation of care and services: the person with a TBI, their close ones, and interveners.